Tuesday, September 27, 2011

Third times a charm....RIGHT?!

SO it happened again.

I thought I had explained fully the second time that this seizure nonsense was over.

I guess I still haven't made myself clear enough.

For the third time this morning I got to watch my daughter look like she is possessed by some kind of devil. And as far as I am concerned, until we figure this thing out, that is exactly what is causing these stupid stupid seizures. They happen the morning after she throws up and has diarrhea. No fever...but if I get one more informational pamphlet about how to treat my daughter's febrile seizures I am going to go insane! And after our exciting ambulance ride to the hospital we had another doctor take a look at her and say "She doesn't even appear to be sick! I don't know what could be causing these seizures." Ironic that I am sick of hearing that she looks healthy. I would almost rather someone say--"Aha! there is the cause, she has such-and-such. Here is how we are going to treat it."

Some differences in the experience this time:
-I was alone with her at home, and she was in my arms. So that means I got to experience the start of the seizure. That was by far the hardest part for me....she twisted up and backwards somehow so that her convulsing face was looking right at me. Blah, so not fun.
-I did have clothes on this time! Bonus to this being the 3rd seizure. I recognized the same symptoms from the last seizure, and had clothes on just in case. The irony is that I had just texted my mom to tell her that I thought Kate wasn't going to have a seizure because she was acting normal RIGHT before she had one!
-I was actually calm at the end of the seizure. I recognized everything about how she was acting, and felt confident that she was perfectly fine.
-I didn't trust my instincts however. The EMTs told my emphatically that they did not recommend me taking her to the hospital or doctor alone. So I caved and took another expensive ride!
-This set of EMTs told me to sit in the front of the ambulance when we walked out there, like next to the driver. I sat up there for 5 minutes trying to be obedient, while I listened to them trying to put an IV in my kid. Finally I said forget it and got up, opened the door and said "ok I have to at least hold her. You guys can't expect me to just sit up there." They looked at me like I was nuts. But the only woman there smiled at me and got me a seat.
-Kate was wide awake on the way to the ER. She was giving the EMT who tried to give her an IV twice (and failed both times) the biggest stink eye ever. All of us in the ambulance were cracking up at her mean face. Watch out--my kid is serious!
-Jon was too far away at work to make it to the hospital, so my Sister in law Susan, and both of Jon's brothers here in TX came to make sure we were taken care of. Kate was so happy to see her aunt Susan! It is such a blessing to live in a place where we have family. I would have been stuck without them! Thanks again guys!
-This ER visit lasted about an hour. The doc came in, looked at her for maybe 10 minutes, some of which was looking at her charts. He then proclaimed that he couldn't do any other tests that we hadn't already done, and said to just live life like normal and wait till we go to see the specialist in November. yay. I love waiting. And paying a bunch of money to find out NOTHING!
-The pediatrician then had us come to his office and essentially said the same thing. Except, he said if she has another seizure like this I don't need to call an ambulance. I can just monitor her on my own. That is seriously the only good news I got all day!

Gah. That is all.

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